April awareness...

April is Alcohol Awareness Month according to several different governmental organizations. That’s good. We should all be aware that alcohol is out there. I was thinking maybe someone might have missed the fact that alcohol exists.

Maybe it should be Alcoholism Awareness Month. That would make more sense to me. But, even then, doesn’t everyone know that alcoholism exists? Unless you’ve lived on a desert island or in a bubble, how can a person not be aware of alcoholism?

I know that for some people alcoholism is something that happens to someone else. It is in someone else’s family; ruins someone else’s life; kills other people’s loved ones – but for some people alcoholism just doesn’t seem to have much of a meaning to them. The belief that alcoholism has no effect on people who do not drink is just a fantasy.

We are all, in some way or another, affected by alcohol abuse. Here are some facts that non-drinkers may not have ever considered.

According to the Pacific Institute for Research and Evaluation. Costs of Underage Drinking (Updated edition. Prepared for the Office for Juvenile Justice and Delinquency Prevention Enforcing the Underage Drinking Laws Program under contract no. 98-AH-F8-0114. Rockville, MD: Author, 1999) the total cost attributed to underage drinking (which includes the cost of traffic accidents, violent crime, injuries and treatment) is over $52 million per year.

If you are thinking that is not a cost borne by the everyday person, think again. When these expenses are not met by the families of underage drinkers, they are picked up by social service organizations like Medicaid which in turn translates in higher taxes and higher medical expense for those able to pay.

In 1992, the estimated productivity loss for employees with past or current alcoholism was $66.7 billion. (Harwood, H., et al. The Economic Costs of Alcohol and Drug Abuse in the United States, 1992. Rockville, MD: National Institute on Drug Abuse, 1998.) Again, you may be thinking that would be the employers’ problem and not yours. Those losses have to be made up somewhere. The end result is an increase in the consumer cost of whatever that employer produces.

Here’s another thing to be aware of: When alcoholism results in crimes for which the alcoholic becomes incarcerated who pays for their cell, clothing, food, health care, etc? The answer is that we all do. Our taxes pay for our prison system which is full of drug and alcohol addicted persons.

The above is just some of the economic costs forced upon society by this thing called alcoholism. There is also an emotional toll to pay. Let’s take a hypothetical here:

A man (we’ll call him Sober Driver) is driving home from work and gets hit by a drunk driver (we’ll call him Drunk Driver). Sober Driver dies instantly. Drunk Driver walks away without a scratch. How ironic is that? But wait, it doesn’t end there.

Sober Driver had in his car a very valuable silver cup which he planned on giving his daughter as a shower gift for his unborn grandson. The silver cup is destroyed in the accident which is a monetary loss if you don’t consider it was only gift he would have been able to give his only grandchild. Now the cost is not just the cost of the cup, but the memory it would have held which makes the cup priceless.

Sober Driver leaves behind his wife, who must now go back to work because after years of being a “stay at home wife and Mom”, she now has to pay the bills. She won’t make as much money as her husband because she doesn’t have a college degree. She may need to sell the home and move to smaller quarters. Not only is this another financial burden, but the loss of the family home creates a feeling of displacement. She becomes depressed over the loss of both her husband and her home. Someone else’s alcoholism has taken them both away.

The depression doesn’t end with Mrs. Sober Driver because her daughter and son, as well as any other family members, will mourn the loss of their beloved Mr. Sober Driver. The unborn grandson will never know his grandfather’s laughter and delight at holding the infant in his arms.

The expense continues when we find out that Mr. Sober Driver was an engineer who was working on a project that would make attaining fresh water a reality for third world citizens. Someone else will pick up the project, but it will take quite a bit of time for the new person to get up to speed which delays the project completion by as much as a year.

There are a number of scenarios that could be read into the expense of alcoholism as it relates to non-alcoholics. In my opinion the awareness that we must have is that alcoholism doesn’t just cause problems for the alcoholic or the alcoholic’s family. Alcoholism causes problems for everyone.

I'm a hypocrite...

Spring has sprung… I think. Maybe I should hold that thought for a few more days. Just when I start enjoying the beautiful day, we are hit with an awful day. Aren’t we past that six-week groundhog thing?

With the advent of Spring, my mind turns to fresh ideas to help me find other things than alcoholism to occupy my time. That is to interject some laughter, delight, etc. into my very full schedule. Without that break from caretaking Riley, I would become too stressed to do anything at all.

In the OARS Groups, I always push for the members to find their passion. Or at least find something that instills a sense of self into their lives. For some of the members it means taking a part-time job; or taking a class; joining a book club; create something; cook something; or anything else that they can do that is outside the realm of the alcoholic. The term often used is “detachment.” I don’t particularly like that term, but, OK, I can use it here. I don’t think of it as actually detaching, but rather finding oneself and learning to thrive in the midst of the chaos.

After it had been suggested that I “slow down” by my doctor, I felt a bit defeated. SLOW DOWN? I feel as though I’m already going rather slow. I don’t do a lot of physical activity and I can’t control the craziness that Riley sometimes generates, so I’m not sure how she means that I should slow down. In the back of my mind I’m thinking that there are certain things I do that I won’t compromise on – like writing this blog or creating live OARS group meetings.

I was still pondering the question when I was joined by my granddaughter. She, also, had been thinking about how I could slow down and she was in agreement that knowing me, it was not likely to happen. So she took another stance on the situation. In her opinion, for me to slow down might mean that I should relieve myself from a bit of stress. She wanted to offer a suggestion on how I could do that not by reducing my tasks, but by adding a task.

She showed me pictures of her daughter in dresses and outfits that I had made for her. She reminded me that making those clothes brought a lot of happiness to me. I remembered. I remembered how pleased I was and how calming it was for me to make those clothes. It was something that I truly enjoyed doing and I didn’t see it as a chore, but rather a reward. I agreed that I missed sewing and wished I were able to do some now. And why wasn’t I? I mean really? Why wasn’t I making the time to do something I loved to do that was so completely outside of the chaos circle?

I gave it a lot of thought. I was being a hypocrite. I was telling all my members to do what they love. I quoted from the book “Do What You Love – The Money Will Follow;” “Who Moved My Cheese;” and “What Color Is Your Parachute”. And here I was only partially taking my own advice. I do what I love, but it is only because I’ve been inside the chaos for so long. I write my blog, which I love. I push forward with the support groups and other activities, which I love. But, there are projects that were pushed to the back burner in the process. What about the family history book that I started? What about planning a family reunion? What about designing children’s clothing? All that got pushed aside so I could focus on helping others.

I see no reason why I can’t take back something that I love -- like designing little girl’s clothing. It is not stressful and it is productive. Most importantly, it is something all my own. Riley can’t touch the happiness I get from watching my great-granddaughter light up with anticipation when she knows I’m making something for her. Alcohol dementia cannot sneak in and ruin the feeling I get when I see her proudly wearing her new, original outfits. When she says “I don’t need to go to Macy’s because I have MeeMaw”, there is a sense of pride that overwhelms me.

But there is an issue. It costs money to create those outfits. Money is tight. So how do I make this cost-effective? My granddaughter was way ahead of me. She suggested that we start a children’s summer clothing line. She had already talked to two other people who were willing to help make this a reality. We would have a fashion show using the young girls in the family as models at our “grand opening show.” It was clear that she and her cohorts had planned this out and waited until they could meet all my objections before presenting it to me. I’ve been told that I say “yes” way too often and “yes” was the answer to the question – would I be willing to start Carolina Sunshine Creations?

It’s already started. We have already put together the fabrics (from my fabric stash), designs and how they will be presented. Carolina Sunshine Creations is a reality. Primarily it will be sundresses, shorts, capris, tops, and cover-ups all mix-and-match coordinated. There will be matching hair bows, sunglasses, flip-flops and beach bags. The designs will be simple and each dress/outfit will somehow be unique to any other in the line. Since we live in a resort area, we will focus on the tourists vacationing at the beach. The clothing will be offered only between May 1^st and September 15^th. We hope to start a web page soon so the clothing can be purchased on-line. If this goes well, we will create Halloween costumes and a holiday collection. But, for the most part our main focus will be on summer clothing.

I don’t know if we will turn a profit. If we do that’s great, but if we don’t our profit will be the fun of working with my daughter, granddaughter, great-granddaughter and my granddaughter’s mother on a project that will bring us all closer together. My personal profit will be that the experience will help me thrive instead of just surviving.

If you are inside a chaotic circle and need some respite from the insanity, find a way to do something just for yourself. There are lots of avenues out there. Just a few may be: Volunteering; Reading; Writing; Tutoring; Cooking; Sewing; Working; and any other thing that may be close to your heart. I hope my readers can offer other suggestions on finding your passion.

Moonlight on my path...

I love a big, bright, luminescent full moon. And sometimes, just sometimes when I stare at it for too long, I can feel a bit of loony-ness come out in me. I laugh a little louder; sigh a little deeper; talk a little longer; create a little wilder; and believe a little stronger. I like the full moon because it gives me license to do all those things. That is – as if I needed a license – NOT!

Recently we had a full moon. I think there is an after-affect. Maybe a kind of glow that lingers after the moon sets and the sun rises. Maybe there is a kind of “full moon craziness glow” that lasts for days after the full moon. That would explain a lot about both mine and other people’s actions.

I had an awesome Easter Sunday with my family. I laughed so hard my sides ached; I talked until my throat was sore; and ate more than healthy amounts of every tasty food served. Then I went home (really just downstairs) and crashed into bed at an extremely early hour. I don’t know if my excesses were a result of the full moon and I don’t care. What a wonderful day!

Riley chose a different sort of day. He stayed in his room and watched NCIS re-runs and played with a visiting dog. Gander is a golden retriever who is too old to just run around in the backyard with the other visiting pups. He is quiet and gentle. Both Riley and Gander enjoyed each other’s company. It was a good way to spend the day for both of them.

Riley and I were presented with several paths through our day and we each chose a different one. Neither path was wrong, crazy, good or bad. It was just a route of our choice. It was what worked best of each of us.

It’s my experience that life is a little like that. There are lots of paths we could take and we make our choices based on information available at the time. Sometimes we take a path that is well worn by others who went before us. Sometimes we pull out our machete and carve a whole new path just for that segment of our life. No path is right or wrong. Sometimes there are detours. Sometimes a bridge may be washed out and we must go back and start again.

The interesting thing about these paths is that they really don’t lead anywhere. They are just routes that provide scenery, opportunity, joy, sorrow as we go through our life. There’s an old saying that goes like this: Life is not a destination. Life is a journey. If that’s true then what is important is not where the path leads, but what is found along the way.

Riley’s path is different from mine. He prefers certain things that I would avoid at all costs. It’s his path and his choice to follow it. It’s not my place to carve the path for him. However, if his path puts him into quicksand, I can chose to reach out the branch that pulls him out so he may continue in whichever direction he wants. Or I can choose to just do nothing.

My path is one that has ugly, dangerous thistle bushes mixed in with the beautiful gardenias and camellias. I know they all have a purpose and I appreciate their beauty even in the ugliness. I encounter many different people and they are each on their own path. If our paths cross, we may converse for a while, share a cup of coffee, exchange ideas or we may simply ignore each other. Sometimes people join me as a walk down my path. It’s their choice to walk beside me or to go their own way. I may offer my opinion on how dangerous it may be to walk through an alligator infested swamp, but if that’s the path the person chooses, well, so be it.

While walking down this path as Riley’s caretaker, I stop and try to gain every bit of information I can so that I can make informed choices about my direction. I talk to him. I talk to other addicted persons. I talk to other caretakers. I talk to my family and friends. I get their points of view, but at the same time, I remember that their points of view are just “their points of view” and don’t have to be my point of view.

Riley makes his desires very clear to me about the path he wants to take. He wants to not be sober. That doesn’t mean he wants to be drunk. But he doesn’t like sobriety. This path he is on at the present time is not a path he would have chosen willingly. It was the only route available. It’s like having to get over a mountain when all but one road is washed out. Sobriety is Riley’s mountain and he just wants the fastest way out of it. It would not be my choice. But, it’s not my path… its Riley’s.

In my opinion, Riley’s quality of life is pretty good right now. I don’t know why he would want to change that. But the fact remains that he does want to change it. He wants off this path and change the quality of his life because for him this life doesn’t have the quality he wants. For him, if this is the only life-quality he will ever have available to him, he would rather get off the life path altogether.

It is hard for a non-alcoholic person to understand why anyone would want to live in a hazy, crazy world of inebriation. As I sip on my occasional (once or twice a year) glass of wine while having dinner with a friend, I am careful not to enter that place of having one-too-many. I hate the feeling of being personally out of control and so I avoid it as often as possible.

Riley is the opposite. He loves that feeling of euphoric floating through any event. He doesn’t care what the consequences are; he only knows that the feeling is what he covets.  It is the path he will choose at every opportunity. If he can’t take that path, he will take the path to his room that ends in his rocking chair in front of the TV. He’s not really comfortable there, but he is as comfortable as he can be sobriety.

My point to my readers is this: You don’t have to walk my path. You don’t have to agree with the path of my choice. You are entitled to walk your own path. You are welcome to express your opinion about the path I chose. However, no one is asking you to read about my journey. If it upsets you or is incites personal anger, maybe you should read a different blog. If my point of view is offensive, why bother to read it at all? I’m sure there are other blogs out there that would intersect in a more agreeable manner along your path.

No matter what path you choose, my path will continue even if it is lighted by the full moon craziness glow. 

Shark bites...

Imagine this… you’re on a beautiful, white, sandy beach at the edge of a pristine blue water sea. You really want to go for a swim. Just as you reach the edge of the water you notice a sign saying that the water is “shark infested”. What would you do? You don’t see any visible signs of sharks. There’s no “Sharks” music playing in the background. The water is so inviting and calm and you just want to take a little dip.

This was the scenario I presented to Riley this morning while he was bragging that he had improved in his physical condition and was almost whole again. So I risked the question about going back to drinking. I said, “Do you understand that the reason you have improved so much is mostly because you are not drinking?” His answer was, “Yes.”

I was feeling way too confident or I would not have asked the next question. “Do you think you have learned that you cannot drink and stay healthy?”

“Well, you were wrong. Booze did not kill me and I believe it won’t ever kill me.” He was so matter-of-fact with that little smirky “I’ve proven that you were wrong” smile across his lips. “You don’t seem to understand that I’m addicted to alcohol and because of that you can never expect me to stop drinking.”

My response was that addicted people break the addiction every day and that I didn’t feel that it was impossible for him to stop drinking. After all, it has been almost a year since he had a drink. Why start back now and cause his health to go downhill?

He says he will go back to drinking because he’s an alcoholic. Personally, after everything that has happened over the past six years, it just seems ludicrous to go back to drinking when there is no longer any of the poison in his system.

At that time, I proposed the beach scenario to him. Would he go into the water?

He replied, he’d already been in the water and was still alive. The signs posted were probably more than a year old which meant they were no longer relevant.

Yes, he is still alive, but he has caused his body great stress and there are permanent life-long repercussions to his swim in shark-infested waters. The shark may not have eaten his entire body, he maybe have lost a toe on the first venture out into the water. Well, he lived through that, so let’s go just a bit further out there – and he loses his leg. He heals that then goes back in because, after all, he’s not dead yet. Back into the water and he loses everything up to his waist. And yet – he goes back into the water again and this time he becomes the shark’s dinner.

Riley sees that analogy and believes it just doesn’t apply to him. The sign must be lying, there are no sharks and even if there are sharks, they won’t get him. He was born and raised in Iowa, but I think it should have been Missouri because he has to see and experience those shark bites to believe it will happen. Even then – he really doesn’t think it will kill him.

A few people have asked me how Riley is doing. Why don’t I write so much about him anymore? There isn’t much to write. Riley can maneuverer around the house with the aid of a cane and furniture to give him balance. He can wash the dishes. He can do his own laundry. He can even cook soup in the microwave. He can find his favorite channels on his TV.

In Riley’s mind, that’s really all he needs. He seems to either accept the fact, or is oblivious it, that he can no longer drive, cannot fix a complete dinner, shower without assistance, figure out how to program his TV remote or record a program; play a game of bridge; or do grocery shopping. These used to be things he loved to do. But, he doesn’t seem to connect the dots that the alcohol has robbed him of those abilities.

He proudly announces that as soon as he has the chance he will be drinking again. So why don’t we just have a bottle of wine with dinner? Why don’t we have a cocktail while he watches me cook? Besides, I can keep him from getting drunk if he’s right there with me --- right?

WRONG. He wouldn’t share that bottle of wine with me. I’d have to have one of my own of which I would only drink maybe two glasses and he would finish my bottle too. It isn’t a cocktail while cooking – it would be a bottle which he would be the only one drinking. It would gradually increase to more than one bottle and, WHAM-O!  We are back in the hospital and he’s clinging to his last breath of life wondering where he is and how he got there.

I can’t control everything. Hell… I sometimes can’t even control my own diabetes. But, I will not subject myself to his insanity any sooner than absolutely necessary. I know the day is coming. I know he will find a way. Maybe it will start with my vanilla extract or mouthwash or the cough syrup. Maybe he’ll take a hit of my favorite perfume.

Riley is a smart guy, in spite of his stupidity, he knows that when I catch him drinking things not intended for consumption, I’ll probably give up and go get him a bottle. I truly hope it doesn’t come to that. And, it may not even be me who ends up buying it for him. He can be a very convincing man when he wants to be.

Right now, my waters are shark-free. But if I should see a sign posted, I will not question how long it has been there or if it is true. I’ll just lay on the beach and soak up the sunshine. That is, while I still have sunny days.

I speak!

Turn into www.RMCOnAir.com at 3:45 PM PST (that's 6:45 for the east coasters) to hear the Care for Kids Program founder Dr. Gloria Montgomery when she interviews The Immortal Alcoholic's Wife.

Just go to that web address and click on the "listen" button at the designated time and you're there. Don't miss it.

Binge drinking and kids...

Allison Morris has created and produced this graphic containing information about binge drinking. She asked for me to post this on my blog and I'm happy to oblige. This is great information... Thanks, Allison for your submission.

The Dangers of Binge Drinking

created and produced by Allison Morris

If you're a student, or just around college student age, you're probably all to familiar with the phrase "binge drinking." Whether you partake in a little excessive imbibing yourself, or you just know people who do, the term "binge drinking" tends to be overused and completely saturated in the minds of many of those who are at or around age 21.

While the college student demographic may find the term binge drinking—and all the cautionary tales surrounding the concept—to be almost devoid of meaning now, the fact is that, with more and more kids overusing alcohol at younger ages, even the most seasoned drinkers would do well to learn a little about the phenomenon.

"Binge drinking" really refers to how many drinks someone has consumed over a certain period of time; for women, bingeing is consuming four or more drinks in two hours or less, for men it's five drinks over the same time period. And while the immediate risks, such as blacking out, vomiting, or passing out, are generally known and accepted among binge drinkers, some of the related effects aren't always as apparent. Binge drinkers tend to have higher incidence of drunk driving, STDs, and accidental pregnancies, to name just a few. The attached infographic takes a peek into the world of binge drinking, as well as what some of its lesser known repercussions are.

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THANK YOU, Allison and www.onlineeducation.net for making this graphic available.

TO MY READERS:

Currently, I am involved in the Care for Kids program which is holding a fundraiser June 2nd. The money received as a result of the planned event will be donated to a fund that will provide recovery care for kids between the ages of 11-17 years of age.

When I think of binge drinking I think about the kids in this age range because they are more likely to "party hardy" after a football game or "get wasted" after the prom. Their drinking is sometimes limited to weekends or events, so they have a tendency to drink more alcohol in a short amount of time. It's a dangerous situation for them.

Dr. Gloria Montgomery recently posted on her fundraising site:

---"NATIONWIDE EPIDEMIC! 6 in 10 high schools and 1 in 3 middle schools are now drug-infected. Younger teens now have readier access to prescription drugs than marijuana. Drugs are more popular than cigarettes among high school students. On average, 47% drink alcohol; and 40% percent use drugs, including prescription drugs. In 2012, private schools and public schools weighted equally in these statistics. Treatment centers can cost upwards of $50,000, some more than $100,000 per 30-days treatment."---

 

I am a product of the 60s when everyone was doing something that they shouldn't be doing. Everything was experimental and the children (young adults) seemed to have no fear of the potential consequences. Heck, at that time, no one really knew what the consequences were because it was never talked about or seen on TV or in the newspaper. I never inbibed, but was always observing and protecting those who did. I preferred my wine to drugs, but still had such a need to control that I seldom drank to the point of having that dreaded hangover.

I remember back when my children were teenagers and I suspected them to be smoking a bit of marijuana. It was during the time that Riley was drinking himself out of the Navy, out of his civilian job and out of our house. I was distracted. But that isn't an excuse because I thought -- "It's just a little mari-jo. Thank goodness they aren't drunks." Now I think -- I was so very naive.

My son became a responsible young man who dabbled in drugs like cocaine and meth. But, his love of his job prevented him from taking the white stuff to an extreme. Yet, at the young age of 43, he died as a result of alcohol abuse. He died from the legally obtained liquid poison called booze. Did his early experimentation with marijuana eventually lead to his death? I don't know and will probably never know.

My daughter has also experimented with drugs beyond marijuana. She decided the life was not for her and in her early twenties stopped using any drugs or alcohol at all. She now will have a couple of drinks when out with friends, but prefers to be the designated driver.

They say 20/20 hindsight is flawless. I don't know who "they" are, but I think "they" are right. As a parent, I don't know if I could have done anything that would have stopped my kids from experimenting with drugs. I do know that things could have gone in a much worse direction than they did. I'm just lucky.

If my kids had become addicted to any substances, I would have been extremely grateful for a program such as "Care for Kids."

One year's difference...

This was a post I made about a year ago. I wanted to re-post and show the difference a year can make -- OR that a year and sobriety can mean no change at all.

May 14th, 2011

One of my very first needlecraft projects was to embroider a set of kitchen towels. My mother bought seven blank “flour sack” towels and ironed a transfer onto each one (do they even make those anymore?). The lines were to be stitched using brightly colored embroidery thread in several different stitch styles.

There were seven towels – one for each day of the week and each day had a specific task: Monday-Sweep; Tuesday-Dust; Wednesday-Laundry; Thursday-Ironing; Friday-Mend; Saturday-Shop; Sunday-Rest. It took me a while to get them completed, but I was sooooooo proud of them when they were all done and neatly hung on the handle of the oven. For months I changed them daily so they matched the appropriate day of the week.

My little girl mind would often drift into believing that maybe this is how life was supposed to be lived. Was there a time for each chore and was always to be done consistently each and every week? I wondered if this was the way life was suppose to be lived and the fact that my family didn’t operate in that manner meant that we were somehow not living the “right” way.

After a few months, I forgot about putting the right towel out for the day and just grabbed one when needed for drying the dishes without concern for what day of the week it was. But, I did, however, carry over a bit of “neatish” behavior through my teen years. While other teens had rooms resembling the city dump, mine was neat and clean. My closet was divided by dresses, skirts, tops and pants and in each section the clothes were organized by color. For a teenager – I was definitely not normal.

As I have gotten older, I have digressed… Fast forward 40+ years… left to my own devices, I would have a house that was livably clean but not spotless. You might find yesterdays coffee cup still on my desk and the newspaper might be thrown about the sofa. In my room there is a stack of clothes that needs to be hung up or put away. If I lie down during the day, I do not re-make the bed. My toothbrush doesn’t always make it back into the holder. My bedroom slippers never make it into the closet.

I know I have a point here somewhere in the clutter of my mind… In Riley World there would be a kitchen towel for every day of the week and each would have a list of tasks. He would adhere to those tasks as though they were the holy grail itself. The towels would be changed at 12:01 A.M. every single day. They would be clearly hung on some special hanger in view for all to see. There would be no deviation.

Imagine the frustration he must feel when comforted with the fact that the pile of things… *#!% ...as he calls it… accumulates on my desk and my attitude is “I’ll get a round to it this week.” It must cause extreme stress for him when he gives me a grocery list and I come home with only seven of the ten items. Riley lives in an absolute black and white world. I live with approximations and shades of gray with an occasional absolute thrown in.

Riley says he has Obsessive Compulsive Disorder – I’m not so sure. The absolute routine of Riley’s world has a purpose. He has told me that if he gets everything done that needs to be done, his time then becomes his own do to with as he pleases. And what he pleases is alcohol related. In his mind, it’s OK to be drunk to the point of peeing your pants, if the kitchen counter is spotless. It is OK to be oblivious to the end table having rings from his beer cans if he vacuumed the floor this morning. That doesn’t sound like OCD to me. It sounds more like alcoholic behavior.

There is a jagged sort of logic in his thinking. It’s not one I agree with – but it belongs to him and I have no right to try to take away his thought process. As he – again – progresses towards end-stage, he needs those daily reminder towels to keep him on task because he sometimes confuses Monday with Wednesday. He has difficulty remembering his self-assigned tasks and when he is to do them or even if he has already done them.

I know that part of it is the memory loss from the stroke. But I am also acutely aware that most of it is that his frontal lobe is saturated with ammonia and therefore not truly able to agree to anything for a long period of time. I also know that he finds some kind of “pay back” in creating minor difficulties for me. If he is not happy in the living arrangement, he will not let me be happy either. Or, if he makes me miserable enough, I’ll send him away.

Whatever… I just want to give fair warning… if I see that Tuesday Towel around here, I will promptly burn it and then claim no knowledge.

March 10, 2013

Now that Riley has been sober for almost a year it would be easy to assume that the Tuesday Towel scenario would be in the past. But, that is far from reality. I still don't like living in a sterile environment and Riley is even more determined to drive me crazy with his little cleanliness endeavors.

When I have my morning coffee, the spoon I use to stir in the cream and sugar is washed, dried and put away before I finish my first cup. And evidently I have a two cup requirment because Riley asks me every morning "Have you had your second cup yet?" The question is really "Can I clean up the coffeemaker now?" It has nothing to do with me getting my fill of caffiene. So not only is my spoon no longer on the counter, the coffee pot is no longer holding coffee. That's all before I finish my first cup.

I like to lay on the sofa and watch my soaps. During this wintertime season, I cover with a fluffy throw. If I go to the bathroom during a commercial, when I return, my throw is neatly folded and returned to the back of the sofa. He must fold up that throw a dozen times a day.

The cleanliness level feels rather false to me. He goes crazy over sweeping the floor, but refuses to use the vacuum cleaner on the carpet. He pesters me to clean out the fridge, but will leave his chicken out on the counter for several days -- telling me not to put it away. And get this -- he eats it and never gets sick. He keeps his beard neatly trimed and reminds me he needs to get a hair cut, but never takes a shower or washes his hair.

Not all things are resolved with the advent of sobriety. Sometimes the little things that we find exasperating during alcoholic drunkenness become overwhelmingly intolerable in sobriety.
I have to stop writing now because Riley wants to clean out my "to be filed" bin.

All about me, me, me...

I remember back, almost a year ago now, I sat at my dining room table with three hospice workers from the home health care agency. It was our first meeting and we were setting things up for Riley to be treated as a hospice patient rather than just a stubborn old drunk. I had to sign a paper stating that I understood that no measures would be taken to keep Riley alive. For me, I felt I was signing his death warrant. I hovered over the place where the signature was to be, but had difficulty actually putting the pen to paper.

The hospice worker was very patient. She asked me what was holding me back. We talked about my feelings of failure because I had not been able to get Riley to desire a better life. I told her of my need to see things through to the end. And I told her how tired I was in general.

As we talked I came to understand that my hesitation in signing the paper was really not about Riley, but instead it was about ME – my feelings, my needs, my desires, my failures, my anger, my everything. I also began to understand that I was experiencing a form of de-Je-vu from signing papers for removing life support from my son.

I had heard Riley say over and over that he would rather be dead than sober. I asked him if he was sure that this was what he wanted. The answers he gave were vague and reminded me that he was not being realistic. He said alcohol would not kill him. He said he was not dying and wouldn’t die for another 30 years. It was almost as though he was daring me like a challenge in an Olympic match.

I signed the papers and an overwhelming sense of relief came over me. I broke down in the arms of the hospice worker and cried. I didn’t cry because Riley was dying. I cried because whether he died or it was a relift to know it was no longer my responsibility. I cried for my son. I cried for a life that would never know the true potential of living in sanity. Neither my son, nor my husband would die as the people that I knew they could have been, but rather as an empty shell of what was once so very good.

The next day I set about getting Riley moved to the more convenient bedroom down the hall. It would be an easier access for the workers and EMTs. A hospital bed, cabinets and supply storage, a comfy recliner with a side table and reading light, a bedside potty, these were all the necessities of allowing him to die.

A hot pink notice was placed on my refrigerator door and on the door of Riley’s new bedroom. It stated that if the EMTs were called, they were not to take any heroic measures to preserve Riley’s life. Instead they were to call the hospice hotline and they would immediately send out a worker. The hospice nurses would make Riley comfortable and let him pass to another place.

It was less than 24 hours later when I was told that he was a half point off on his albumin panel and therefore, Medicare would not pay for his hospice treatment. I was on my own again. And only hours after that notification, Riley was calling me from his new bedroom because he wanted me to call the EMT’s. He was having a heart attack.

As I held the phone in my hand, I hesitated. I had a little debate inside my head. Call. Don’t call. Who would know if I didn’t call or if I waited too long to call. There was no one in the house but us. Our nearest neighbor was a ways down the road. No one would know.

There was just one little hitch. I would know. I would not only know but I would have to live with that decision for the rest of my life. I dialed 9-1-1 and went to Riley’s bedside. I would know. My conscious would be haunted. It was all about me and not about Riley at all. I wasn’t as interested in saving Riley as much as I wanted to save myself.

When they loaded him onto the helicopter for his ride to Greenville, I was told he would be there in about 15 minutes. It would take me 2 hours to get there by car. I was tired. I wanted to sleep. The sun was starting to come up and I had only slept for a couple of hours. But, I went home, packed a bag and headed off to the hospital.

In the back of my mind I was thinking, “Someone else is watching over him and caring for him. There’s nothing I can do. Nothing will change by me being at the hospital.” I thought about turning the car around and heading home. The peacefulness of a Riley-free country life was calling to me.

Then I started getting phone calls from the hospital. They needed his history, papers signed, information, etc. and needed to know when I would be there. It was a jolt back to reality. As much as I wanted to only think about myself, I knew that this was really about Riley and not me.

My day would come when I could be self-centered and only consider what was best for me. This was not the day. On this day in May, I would do what Riley needed for me to do. After all, I was being told to call the family and let them know that Riley would never be released from the hospital. It didn’t seem like it would be long before my selfishness could begin.

As all my blog followers know, Riley did survive and is still alive today. So he has won this match of the challenge but the game is still in play.

I realize that if Medicare had not stopped the hospice, Riley would not be here today and I could revel in my self-centeredness. The reality is that there will always be something that will prevent me from being as self-involved as I think I would like to be. There are my grand and great-grand kids, blog followers and group members who will always need me in some way or another. I can’t see myself ever turning my back and saying – “Well… I’m just too busy to help you.”

As much as I would like to think this whole hospice thing was about me wanting my peace and aloneness. It really was about Riley and what he needed. Not so much about what he wanted but what he needed. He needed me to sign those papers because he only had two choices – sobriety or death. He chose death. He let me know on a daily basis that he wanted me to let him go. Let him die.

Was signing the hospice papers about me? Of course it was. Was signing the papers about Riley? Absolutely. It was about both of us. It was giving both of us not just what we wanted, but what we needed. If I had it to do again – and eventually I will have to face the situation again – I would sign on the dotted line. Watching Riley be miserable in this Linda-enforced life of sobriety makes it very clear that this is not the life he wants. He truly does mean it when he says he would rather be dead than sober.

They don't have to die...

Since I started this blog, a few years back, I get contacted by people who need or want me to donate to one thing or another all the time. I don’t have the funds to give to everyone who sends me a sweet e-mail. Heck, I have trouble getting donations for my own endeavors, so unless it is something I just can’t resist, I always pass.

A couple of days ago, I got one of those e-mails. The first sentence was “I need your help in fundraising.” I thought – Oh here we go again. But as I read, I realized this isn’t just an opportunity to help a deserving organization, it’s an opportunity for me as well. Not to mention that what was offered sounded like a really, really FUN thing to do. I don’t get a lot of opportunities to just do something outside the box for fun.

Hollywood and Vine Recovery Center in Los Angeles has seen addicts through the recovery process many times. Celebrities have passed through their doors as well as homeless, uninsured people in desperate need of help. Everyone receives a “hand-up” out of the insanity.

I’ve been stomping on my soap box for a long time that rehab centers should be required to do some kind of “pro bono” rehabs. When I found out that the proceeds of this event will be used to pay for rehab treatment for those who could not get it otherwise – well – I was ALL on board. Although the program will focus on the younger addict, it also covers adults. That was even better. Who knows... maybe if this had been available to my son, he might still be alive today.

The event is the Hollywood and Vine Musical Extravaganza and will held on June 2^nd at Club Avalon. There will be many celebrities performers such as the guitarist, Mike Pinera who was a member of the Blues Image Band who had the hit in the 1970’s “Ride Captain Ride”. He was also a member of Iron Butterfly and Alice Cooper.  Members of both groups are on the agenda to perform. If that’s too “old school” for you how about Nick Hawk? Or the Chris Weaver Band? On a more folksy side there’s Ollin Band. The key note speaker will be Craig S. Strong and the cast of Celebrity Rehab.

This event has the potential of making a huge difference for so many people. Unfortunately, it can’t happen without help from others to meet the expenses. Oh! There’s that ugly word again – expenses and here’s another – fundraising. Everyone’s help is needed. Every dollar will count. I’m asking you to part with at least one dollar to help the show to go on. One dollar. 100 cents. That’s less than the cost of your morning sausage biscuit. Of course, more money -- $5 or $10 or $1000 is all welcome.

There is no official website yet – but one is coming soon. On the funding site there is a link to Dr. Montgomery and information about the Hollywood and Vine Recovery Center. Click the link below to go to the events funding page and make your donation. The life saved could that of your child, niece, nephew or a complete stranger.

What’s in it for Linda Jane Riley? My work will be front and center receiving recognition and exposure to the public. My hope is that it will draw people to the blog, encourage people to join the OARS F&F Group, and help with raising funds to keep the support groups going and growing. This could be the a huge step in making OARS F&F Group into a non-profit organization with real live meetings across the country. Making a donation to the musical event, in the long run, could actually be a donation to my endeavors.

Oh! And let's not forget how much fun it will be for me to walk down that red carpet which is something a little old lady like me never dreamed would happen in a million years!

http://www.gofundme.com/HWAVRC-Musical-Event

Free lunch...

I learned a hard lesson as a child. It had to do with an advertisement I saw that said a car was being offered for FREE. I took the ad to my father and told him I had the solution to helping my brother get another car. My father read over the ad and then read to me the “fine print.” It seems certain accessories were free – like the windshield wipers – but the car itself still had a price tag. After our discussion about how unfair the ad was, he looked me squarely in the eyes and said, “Linda, no matter what anyone says, there is no such thing as a free lunch.”

My father was right. Even a free lunch costs something.  Although it may not be in dollars and cents, the cost can still be more than you can afford. Anyone who has ever felt pressured to accept an invitation from a boss to have lunch, knows that there is a price tag. To accept means your cost is in the time you spend eating with a person you would not choose on an everyday basis.

Recently I had a conversation with the developer of the Webinar “Intervene – An Emergency Guide to Heavy Drinking and Alcoholism.” We were talking about feeling guilty because we have to solicit funds to manage the different projects that we hope will make a difference in someone’s life. As much as we both would like to offer everything we have to everyone who wants it at no cost at all, the fact is that everything cost something.

A comment on my last post says I have gone “corporate.” That I’m no longer real and Riley is forgotten. The commenter was disappointed in me because I posted that my book was now available in Smashwords and that the webinar was coming up and my followers were invited to join. I want to address this comment publicly here so if others feel the same they may be able to understand.

“The Immortal Alcoholic’s Wife” has been offered on this site for quite a while. It is not a new thing. An e-book version was promised many months ago and I’ve followed through on that promise. The book is now available for your Kindle, Nook, IPad, etc. In the next couple of days it will be available at Barnes & Noble and Amazon.  A soft cover version is also promised and I’m working on making that happen.

The webinar is not my creation. I have contributed information for the material, but I cannot take ownership because it is not mine to take. Sandy Jones is the author, creator and producer of the entire 11-week series of classes. She has done an excellent job and there is a lot to learn from her research and efforts. There are expenses associated with this endeavor, such as the web hosting and designing, handouts, teleconference expenses. This was a huge undertaking and while she was working on this webinar, she had less time to work on her real job. To be offered to my readers for $50 is just a drop in the bucket compared to what it cost her.

Besides “The Immortal Alcoholic’s Wife” and the “Workbook for Caretakers of End-Stage Alcoholics” (which is currently being updated), I also have three support groups for friends and families of alcoholics. Two are free to host via FaceBook, but the third is a private site for which I pay to maintain and host. It is expensive. The money comes from the GoFundMe account. Usually there is not enough money in the account and I cut corners on my home budget so I can keep the website up and running.

Besides the cold hard cash that is needed to keep doing what I do, I spend nearly five hours a day on Immortal Alcoholic / OARS related activities. During those hours, I support followers either through e-mail or on the support sites. My in-box has so many letters that where I used to answer every one within a few hours, I now can seldom answer each and every one individually. I do research on things that I hear about or information passed on to me. I plan and organize to expand the groups and eventually make available real meetings with real people. I reach out in my community to offer my services to anyone that I can possibly help.

While I’m doing that, I’m working a part-time “corporate” day-job that gives me just enough income to fund my activities. I’m watching out for Riley and teaching him how to be self-sufficient again after having so abused his brain with alcohol that he only is able to function at the level of a pre-teen boy. I cook for him, clean for him, shop for him and set his TV recorder so he never misses an episode of NCIS. He could not afford to pay someone for all the things I do for him. In fact, when I have someone come in to help, it can cost as much as $50 an hour.

I was once worked for a Fortune 500 company in San Francisco. I wore designer suits to work and had standing appointments for my hair and nails. I worked from very early in the morning into the evening. I planned, facilitated, and attended conferences, conventions, seminars, workshops, meetings and teambuilding events. I couldn’t get through the day without my calendar. I made great money and it cost me great money in cash and time just to keep up the appearances and be away from my family.  I thank God every day that I no longer work in that environment.

In my dream world, I would be able to quit my day-job and find a way to make money on the things that give me the most satisfaction – my Immortal Alcoholic and OARS work. I would be able to help people and put food on the table at the same time. I don’t live in a dream world. I live in reality where the bills come in every month no matter how helpful I am to others. I can rack up hundreds of hours of “good deeds” but the electric company still wants cash.

So… as Sandy and I talked about feeling guilty about trying to make money off this horrible thing called addiction, we came to understand that the more money we make, the more we can benefit others. We discussed the fact that rehab centers make big money off addiction. Doctors, lawyers, hospitals, all turn a profit from addiction. Neither of us aspire to become multi-millionaires from doing what we do. We just don’t want to end up in the red or sacrifice necessities for the cause.

To the commenter who said I’m not real, I’m fundraising. Anonymous is half right. I am fundraising. But I am still real and Riley is still flourishing under my care. I’m helping about 1,000 people on average every single day. Just imagine how many people could benefit if I could afford more time and money to provide the avenues to reach them.

Anonymous – if you’re looking for a free lunch, well, I wish you good luck with that.