Monday, October 14, 2013

I'm still here...

I see I’m being asked if I’m ever going to return to posting on this blog. The answer is YES. In fact, I’m working on a post right now, but don’t expect to find it today – probably on Tuesday or Wednesday.

Although Riley no longer drinks, his physical condition has become extremely demanding. He is left with dementia which is progressive in a downhill manner. When he was drinking, I thought nothing could be worse than that. I was wrong. The dementia is far worse. Thankfully, there is help on the horizon and I might be able to get back to some type of life of my own.

Please continue to support each other as I have seen you all doing over the past months. I do read your comments and happy to see that you respond to each other. Unfortunately, I’ve also been unable to answer my e-mail in a timely manner. I hope you will see an improvement over the next month.

Thank you for visiting my blog and continuing to read even when I haven’t been here. I appreciate all of you so very much. 

Saturday, July 20, 2013

Vacation? Break? Retirement?

I’ve been advised by my doctor to try to slow things down a bit. Immediately after the words left the doc’s lips, I told her I was planning the first ever live OARS workshop and meeting. “Ohhh…” she said… “Well… I want to support you in your endeavor to provide information to people involved in alcoholism, but would you at least consider taking a little break after the event?” I told her I would think about it. And I did think about it long and hard. And then I discussed it with my family. Here is the result of all that thinking and discussing.

For the past month I have not posted on the blog. I have not answered e-mails. I have only very marginally been active in the support groups. I have taken a break from all things alcoholism. The only exception is that I held the workshop event as planned.

I’m feeling refreshed, renewed, relaxed and can see how all the alcohol related activities have been sources of stress. I’m also feeling guilty. I’ve gone back over my (130+) e-mails and I’m concerned that I can’t address each one individually. I feel guilty because I did not respond to them in a timely manner. I’m going to try to respond to the running current theme of the messages on my next post. Hopefully, that can help several people at a time without each receiving an individual response.
In the OARS Family and Friends Group, I always stress the need for the family and friends to find a way to have a productive and satisfying life outside of the alcoholic chaos. Call it detachment if you want. I call it survival. The goal of the group should be that the member finds strength enough to stand on their own and be confident in their own decisions. The goal should be that they not NEED the group so much but are able to give their insight to others who are still in need.

Personally, helping others through the alcoholic maze has been a means of survival. I found strength in helping others survive. Doing research and posting the results, participating in OARS discussions, writing my own life journey (The Immortal Alcoholic’s Wife—available on Smashwords),reviewing books by new authors, and finding new means of reaching out, have all been a part of my route to survival. It has been expensive, not just financially, but emotionally and physically. Oh, there’s so much more I would like to do – but my financial, emotional and physical budgets seem to be running tight these days.
At first, when I agreed to this little vacation, I thought… so what am I supposed to do? Sit around and watch QVC and re-runs of Oprah? Get fatter from trying all the recipes on cooking shows? The idea of this did not make me happy. I couldn’t imagine not having anything to do. I promised my kids that I would take some time to see how retirement feels. I said I would “try it on for size.” So I would see it through to the best of my ability.

It took some effort on my part to focus only on the event and nothing else. When the event was not as big of a hit as I had hoped, I took it as a sign. I cleaned my office. I cleaned my bedroom. I took naps. I watched SpongeBob Square Pants the Movie nine million times with my great-grandson. I scanned family photos. I enjoyed watching the sunrise and began sleeping better. I realized that I didn’t NEED the alcohol related work as much as I thought I did. I discovered that I didn’t do it because I needed to but rather because I wanted to do it. However, I want to go zip-lining and hang-gliding, but know it is probably not something I should do.
I’m not retiring this blog. I’m still going to be posting here. I’m still going to try to address concerns of those who write to me. But things are changing. I will no longer be able to answer each and every e-mail. Instead, I will continuously offer the link for joining the OARS support group. (http://oarsffgroup.ning.com/?xgi=4R6sAeUek4uZ9X ) That’s my recommendation for being one of the  best sources of support for people involved in alcoholic insanity. But, you won’t find me there as often as I have been in the past. I will lurk… interject… just not so often.

One of my goals has been the formation of OARS as a non-profit organization. I’m no longer pursuing that goal. Instead I have (and will continue) to encourage the members to go forward with that project and make OARS non-profit a reality. I will be here to support and advice, but cannot take on the responsibility of such a long-term commitment. This endeavor needs someone who can commit to several years of getting it off the ground – someone younger and in better health than I. There are several people within the group who truly want this to happen and are willing to make sacrifices to see it happen, but they all have regular jobs and time limitations.
If anyone who reads this is interested in helping with sponsorship or mentoring or taking on the task – please contact me and I’ll put you in touch with the people who are actively trying to make a go of keeping OARS going and turning it into something as big as we all think it can be.

I’m not sure about continuing with the workshops. I haven’t made that decision yet and unless I get another grant – I don’t have the money to do it up right.
I’m not retiring. I’m just taking a step back. I’m finding, or rediscovering, other uses of my time. I’m writing another book containing real-life stories of people who have walked in the shoes of loving an alcoholic. (If you have a story you want to share, please e-mail it to me.) I’m collaborating with two other family members to write my family history book. I’ve promised a family cookbook with my Mom’s recipes – time to make good on that promise.  I rediscovered my passion for writing when I began this blog. It’s time to use and expand that passion. It’s time to take my own advice.

Please contact me at immortalalcoholic@gmail.com if you can provide any of the following:

1)      Guest post for the blog with new information or insight;

2)      Help in making OARS a non-profit organization;

3)      Have a story you would like to see in my next book (all stories are identity-protected);

4)      Suggest a topic for a blog posting.

Thank you for being my faithful readers. Thank you for providing me support and encouragement. Thank you.

Tuesday, June 18, 2013

Just another word...

The other day a friend told me about a condition that explained a lot to me about why Riley is still in such denial about alcoholism creating his current physical limitations. The word is ANOSOGNOSIA. Of course, the first thing I did was look it up in Wikipedia.

“Anosognosia is viewed as a deficit of self-awareness, a condition in which a person who suffers certain disability seems unaware of the existence of his or her disability.”

“Anosognosia results from physiological damage on brain structures, typically to the parietal lobe or a diffuse lesion on the frontal-temporal-parietal area in the right hemisphere.”  This distinguishes the condition from denial, which is a psychological defense mechanism.
So, as I understand it, damage to the frontal lobe can cause a condition that prevents the patient from understanding or accepting their own disability. The damage can be the result of any number of things, such as a stroke, lesion, traumatic brain injury, and any other factor that causes injury to the brain. Using those criteria, then I suppose that would include brain damage from alcohol abuse.

What seems to be a simple state of denial that alcohol is a problem, could in fact be the result of Anosognosia. If this brain damage is present, it may be one of the reasons why alcoholics have such a high rate of relapse after going through a near fatal detox. They simply don’t know that their disability is alcohol. It could be the reason why Riley looks at me in confusion when I remind him that alcoholism is his disability and the only medication is to NOT drink again.
I don’t think that all denial is a result of brain damage. I know that denial is a part of the alcoholism cycle – for both the alcoholic and those who love an alcoholic. There must be some type of brain damage for the Anosognosia condition to be present.
In the beginning we family and friends deny the alcoholic condition because we just don’t want to believe it. We don’t want to see that our future may be bleak if the person we love is addicted to alcohol. We know enough to know it is not something we want for the alcoholic or for ourselves. It’s like turning our eyes away from the movie screen just as the axe is about to break open the head of one of the characters. We know it’s happening; we just don’t want to witness it. We know alcoholism is happening; we just don’t want to have a front row seat. Instead of closing our eyes, we deny that it is even on the screen.
Denying the real problem doesn’t serve us very well. The sooner we accept what is going on, the sooner we can find ways to keep ourselves from being the victim under the axe. Once we accept what the real problem is, we can take action to maintain our own sense of self even in the midst of alcoholic craziness.
As the person who is not addicted we cannot point a finger at brain damage and say that is why we do what we do. We do what we do out of desperation to save the alcoholic. Saving the alcoholic becomes the only thing in our lives that has a priority. The sad fact is that we are like Don Quixote jousting at windmills. We cannot save the alcoholic from alcoholism. We can call 911 when the alcoholic body starts shutting down, but we cannot save them from their own denial. The alcoholic’s alcoholism is the property of the alcoholic.
We can understand and accept. If Anosognosia is an issue we can learn about it and realize that it is hopeless to fight it. We can learn everything we can about alcoholism and the related health issues because knowledge is the key to survival. We can find ways to keep our own health from falling victim to stress related illnesses. We can stay engaged in our own lives with our own interests. We can maintain a circle of friends that support without judgment. We can find our own avenues of peace and calm.
It’s not easy to do all that stuff in the above paragraph. It may seem simple, but it is extremely difficult. The first step is to stop believing you can change the alcoholic. Stop denying that there is a problem with your own thought process. It’s not easy to look deep inside ourselves and try to find the person that existed before the insanity.  That person – maybe the art lover, stray animal feeder, avid baker, exercise nut, writer, computer whiz, organizer extraordinaire, coach or something else – is still inside you. That person will help you survive alcoholism and be happy if you can bring that person out into the open.
It doesn’t really matter to me if Riley has Anosognosia or not. It makes it easier for me to understand his point of view. But, it doesn’t really change anything. Riley is still an alcoholic who will quickly be an end-stage alcoholic if he finds a way to return to drinking. I provide him the means to have a healthy life without alcohol even if he finds it unpalatable. That’s all I can do for him. He is no longer accepted at rehab centers even if he had a desire to go. If it was a possibility, I would encourage him to go. I no longer spend hours trying to talk some logic into his damaged brain. Instead, I accept it for what it is – something I cannot change.
I have found my passion. Actually, I’ve reconnected with several of my passions over the past year. I like my life. I don’t deny that there are problems but I separate my fixable problems from the unfixable. I guess that’s the wisdom of knowing the difference.

Saturday, June 1, 2013

Let it go...

Lisa Frederikson is my guest poster for this entry. This is a favorite post from her website www.breakingthecycles.com:

“Let It Go.”  For years I couldn’t relate to this phrase. It seemed so overused, and frankly one that got my blood boiling because it sounded so overly simplistic. Yet, it’s now one of my favorite phrases. In fact on heavy stress days, I’m practically chanting, “Let it go….” So how does it work for me?

How to Let It Go

Over the course of my recovery from 40+ years of family member and friends’ alcohol abuse and/or alcoholism, I’ve come through some heavy, heavy stress days. But it’s because of the years of recovery work I’ve done (therapy, Al-Anon, research) and my newfound understanding of the science behind the codependent’s brain (see this post for more on this) that everything has changed. Between the two I am now able to keep pulling myself back to the fact that I have absolute control of what I think, and therefore, how I respond. I have absolutely NO control over another person’s brain, therefore another person’s thoughts, reactions, feelings or behaviors.
This is not to be confused with how I feel. Because let me tell you, my feelings were (and occasionally still are) ALL OVER the place – anger, sadness, frustration, rage, despair, hope, resignation, emptiness, loneliness, “why me?”, “what happened?” “haven’t I gone through enough?” “Now what?” And, my reactions?
‘Back in the day,’ my reactions were NOT based on responding (explained next). They were immediate and often unproductive as they followed the wild ride of my feelings, ranging from tears to dazed walking the neighborhood streets to yelling at the walls to grinding my teeth (and, oh yea…headaches, too).
But thanks to the “new me,” today, I’m able to weather all kind of stressors, knowing that I have absolute control over what I think, therefore how I respond (again, not to be confused with how I feel).
Responses (as opposed to reactions) occur when I jar my thinking out of the Limibc System portion of my brain and move it down different neural pathways to those in the Cerebral Cortex, the thinking part of my brain. And it is when I think that I can respond with reason and clarity vs simply reacting out of an emotional response (something that occurs when stuck in neural networks in the Limibc System). To get there – to get to thinking and responding vs feeling and reacting – I use this phrase, “Let it go…” (and others, such as “THINK,” “HALT” and “BREATHE”) to remind myself, “I am in control – when and if I’m ready respond, it’s up to me.”
To help me figure out what to do next, I talk about the problem with friends or family, go swimming, sleep, hike, rock climb, research, write about it, work, practice mindfulness — some of these activities are directed at finding a solution and some are just to take my mind off the problem.  In other words, after I feel my feelings and the range of reactions they inspire, I can think things through and then “calmly” respond. Followed, of course, by “Let it go…” (releasing that kite string) to remind myself to move on – enjoy the moments – because who knows what might happen, next.

Not to Overly Simplify, But Perhaps…

“Letting go” does not mean I’ve necessarily found an easy or immediate solution or that all is well. “Letting go” is more like a clearing of my mind for that moment or period of time. It’s a reminder that I can’t solve it all at once, but I’ll do what I can, when I can, however I can. Often it can be as simple as gaining a new perspective, and with that, I leave you with the following image:



About Lisa Frederiksen:

Lisa Frederiksen is the author of nine books and a national keynote speaker with over 25 years public speaking experience. She has been consulting, researching, writing and speaking on alcohol abuse, drug addiction, secondhand drinking, treatment, mental illness, underage drinking, and help for the family since 2003. Her 40+ years experience with family and friends’ alcohol abuse and alcoholism, her own therapy and recovery work around those experiences, and her research for her blog posts and books, including her most recent - "Crossing The Line From Alcohol Use to Abuse to Dependence," "Loved One In Treatment? Now What!" and "If You Loved Me, You’d Stop!" - frame her work with medical school students, families, individuals, students and administrators, businesses, public agencies, social workers, family law attorneys, treatment providers and the like.

Sunday, May 26, 2013

Chipping away...

I believe that if you want something you must work for it. Good things seldom come overnight without blood, sweat and tears being shed. Often, in the pursuit of reaching a goal, obstacle blocks are placed in the middle of the path.

In my attempts to create the support group, OARS F&F Group, I’ve reached many obstacle blocks along the way. At first it was a trial and error sort of thing. I started the open page on Facebook as Immortal Alcoholic. After the open page started getting some momentum, I began receiving e-mails that more privacy was needed and that gave birth to OARS Family and Friends group on Facebook. But there were still more concerns with the unpredictability of the Facebook format.

Today, people who find themselves involved in the life of an alcoholic can find support on the independent site, OARSFFGroup.ning.com. This is an independent site which can only be joined via invitation. Although joining is easy since the invitation link is published in many places, the posted content is monitored for signs of disrespect, judgment and criticism — which are just not tolerated.

You might be surprised what you see if you visit the site. If you don’t have any experience with an alcoholic, you might even be shocked. There are videos, pictures, poems, songs, and links nestled in with the posts that support whoever is in need of a virtual hug. As we went along creating this site and watching it grow, I realized that we needed more. Virtual hugs and understanding was just not enough.

One member was facing an especially critical event and was alone. Her alcoholic father was dying in the hospital. She had no family to hold her hand. No friend offering encouragement. No person to talk to who could relate to her dilemma. If she had not been so geographically far away, I would have run to her and provided a shoulder to cry on, an objective listener when medical jargon was provided, and someone to sit by the hospital bed so she could take a much needed nap. But I could not be there and she was alone. Oh, she posted on OARS every step of the way. The entire group reached out and provided words of encouragement which helped her immensely -- yet – she was alone.

My goal has always been to take OARS to the next level by creating LIVE meeting which would provide an opportunity for members to network and form one-on-one relationships. The meetings would be informational with speakers relating to whatever topic was on the agenda. There would also be an element of fun. As a person involved with an alcoholic, laughter doesn’t always come easy and even something as simple as reading the newspaper, requires planning.

My obstacle block for having live meetings was a very common issue – MONEY. An event such as the one I wanted would require funding and I was barely making my website cost commitment through donations on my GoFundMe.com site. (http://www.gofundme.com/17t82w)  Someone referred me to an organization called Pollination Nation which offers grants to individuals who want to make positive changes in the world. I thought it couldn’t hurt to apply; after all, I had heard the word “no” before and was still alive. What was the worst thing that could happen??

I submitted my paperwork and within a very short time I received the e-mail telling me I had been approved for a grant! (www.thepollinationproject.org/grants-awarded-page/may-2013/) I could hear a large corner of that obstacle block as it cracked and fell out of my path. It isn’t a large amount of money – just enough to organize a meetings (possibly two) and that’s about all. BUT, it is a start and maybe a start is all I need to build OARS Live into what I dream it could be. Maybe I can help a few people connect, and those few will connect with some other people, and the next thing you know – we have hundreds or even thousands – of people connecting everywhere.

Imagine if you were that woman with her husband in the hospital and someone was right by your side. Can you envision how different it might feel if there were a person to just go get you a cup of coffee? Imagine, if you can, how it might feel to not be “alone” during a crisis.

The first ever OARS goes LIVE meeting / workshop will be held at the end of June on The Outer Banks of North Carolina. The topic will be “Survive and Thrive”. Guest speakers will include an addiction therapist and a career counselor. There will be a light lunch and many opportunities for networking. Tentatively the fun element will be a lot of laughter lead by a Laughter Yoga coach. The goal of this first meeting is to provide information, entertainment and, most importantly, lots of connecting. Each person in attendance should leave the event with the names of three other people with whom they feel they can relate.

The monthly meetings will each have a different topic with different speakers relating to the topic. If I have enough money in the budget, I hope to video the event (while trying to not expose the participants) and put it out on a webcast. But, I’ll have to wait and see.


Corners of the obstacle block are falling off and I can see that if I just keep chipping… the block will disappear. 

Monday, May 13, 2013

Every 19 minutes...

By the time I finish writing this post three children will have died as a result of drug or alcohol abuse.

I had a wonderful Mother’s Day. My daughter, granddaughter and great-granddaughter all went out for breakfast and then got mani-pedies. I hadn’t been out in a while and being with "just the girls" was a great way to relax and I even found myself laughing.
Mother’s Day is always a little hard on me since my son’s death via alcoholism. There is this part of me that is missing. I miss having him call me at the crack of dawn and say “Maw!!! Happppy Mother’s Day! Aren’t you happy I made you a MOM!” He was my first child and so he always claims the rights to being the one who made it appropriate for me to be called a Mom. His younger sister says she gives my title “staying power.” Meaning another child means a strong hold to motherhood. Not sure if I really "get" her theory, but sibling rivalry can sometimes be endearing even when it makes no sense.

Now that my son has died a senselessly, his voice is always in my head. I hear him over and over again. And I miss him so much that sometimes it is unbearable. I’m told that it gets easier. If that’s going to happen I wish it would just hurry up and take place because sometimes the pain is as fresh as it was the day he passed.
There are a lot of mothers and a few fathers in the OARS Family and Friends of Alcoholics Support Group. (www.OARSFFGroup.ning.com) They find comfort in communicating with others who know the emptiness of losing a child. They know the helplessness of watching your child walk down a path that can have no good end. It doesn’t really matter if the child is 40 or 14, to a mother a child is always a child no matter how old the child may be.  The pain of the loss is the same. To join the group go here:

http://oarsffgroup.ning.com/?xgi=4R6sAeUek4uZ9X

The inherent paternal instinct is to protect the child above all else. But how does a parent trust and let their child grow into adulthood when the dangers are all around? Should we wrap them in bubble wrap and attach an ankle device that monitors their every move?
I think Dr. Phil might have the right idea. You just do everything you can to protect them. Do everything you can do and then do some more. If you suspect that your child (teen) is involved in drugs and/or alcohol, you must invade their privacy; track their cell phone; lock up your liquor and medicine cabinets; check out their friends; watch for fluctuations in their grades; and get them into counseling.

One child dies every 19 minutes. One life that could have been a teacher; President of the United States; inventor of backpack jet propulsion for everyday use; scientist who discovers a cure for Duchene’s Muscular Dystrophy or Autism; author of a Pulitzer Prize; or an outstanding ice cream cone scooper or coffee barista. It doesn’t really matter what they might have become. What matters is that they won’t have a chance to be anything other than a statistic of how many dead children we accumulate in an hour.
I have been a supporter of the Hollywood and Vine Recovery Center's upcoming fundraising event. They have already been able to help one of my followers by providing recovery services for the child of the follower. They were proactive and speedy in making sure that one specific child would not become a sad statistic. I am grateful that, even though I don’t know who either the parents or child are, they got the help they needed. Their website is:

Being in the throes of parenting a teen-ager has always been exasperating. I don’t know what happens when a child begins to reach the magical “teen years”, but it can seem as though your child was snatched in the middle of the night and replaced with a pod person. Reason and logical seem to no longer exist. Parenting a teen by using reason and logic often feels futile. When drugs or alcohol is added to the equation the chaos magnifies beyond understanding.

There is no such thing as too much knowledge. If you have questions for a professional who deals with addicted children on a daily basis, Dr. Gloria Montgomery can help. On Wednesdays between 3 and 5 pm (Pacific Time), you can go to www.RMCONAIR.com and join in the “Expect a Miracle CARE FOR KIDS” live radio and internet stream radio. Dr. Montgomery will answer your questions. There is also live entertainment and interesting interviews. This is a “home grown” program, so if it feels a bit unprofessional that’s because these people are not performers. They are real people working in the real work of doing everything they can to help addicted children. No frills here. Just facts.
I started writing this post at 8:30am and it is now 10:00am. It’s been 90 minutes and at least four children have died.

Tuesday, May 7, 2013

Who's life is it?

As the spouse of an end-stage alcoholic, people often have a misconception of my marriage. Many times I hear about how much I must love Riley in order to stand by him the way I do. Love is a funny word. There are all kinds of love and I do love him, but I am not a wife in a true sense of the word. I am also not in a marriage that I would really consider as traditional.

In my opinion, a traditional marriage is one where two people join together to create a partnership where they work equally towards a happy life. In a traditional marriage major decisions are made after discussions between the couple until they come to a mutually agreed upon conclusion. The responsibility for financial obligations is shared even if there is only one person working for a paycheck. Communication is open and flows freely. Each person supports the other during times of hardships or ill health. The partner/spouse will be the one person you can trust without doubt. There will be arguments, disagreements, frustrations and even heart-break. But, at the end of the day, they will always be a solid unit.
So maybe I live in a dream world. Maybe that’s how marriage is only SUPPOSED to be but in reality maybe it never is. I don’t know for sure, but if I was in a traditional marriage I think I would feel so differently than I do at this moment. I don’t feel like Riley’s wife. I am care-taker or more of a sister or mother to him or, maybe, even a type of personal manager. There is no desire for anything remotely resembling romance. There is no sharing of hopes and dreams, no working toward a jointly desired end goal. There are just two people living in the same house with absolutely opposing opinions and lifestyles.

In spite of all of that, I have a life. It doesn’t matter to me that my life is in conflict with what Riley wants. Riley made choices that have put him in the situation he is in today. That was his life to screw up or to succeed as he deemed fit. I also made choices that have changed the path of my life. They were my choices to make for my life. I own my decisions, good or bad.
I do not feel that Riley has the authority to make decisions for me. My brain is not toxin saturated and I am still reasonably sane and competent. To have him make decisions with me jointly is like asking my three-year granddaughter what dress to wear today. I might end up wearing a princess outfit, complete with wand and tiara, to a job interview. Unless I was applying for a job at Disneyworld, I doubt I would be hired. The concept is the same. Riley’s decision might seem perfectly reasonable to him, but in reality may not be appropriate.

In the quest for some kind of “traditional normalcy”, I might ask Riley his opinion and even consider putting it into action. I believe that we all want that sort of connection with our spouse. We may even strive to find it in every conversation or action. We search for something that says, “I’m the most important person in my spouse’s life.” We are grasping at straws because we know in our heart and soul that the most important thing in our alcoholic spouses life is getting and maintaining a foggy mind.
Spouses of addicted persons must stand up for themselves and remember that they are individuals and they must make decisions based on sound, reasonable, rational judgment.  That means that the alcoholic spouse doesn’t have a right to make demands or force upon us their need for the appearance of a healthy, happy marriage. Usually marriage to an alcoholic spouse is neither healthy nor happy when the non-alcoholic is constantly treating the alcoholic as though he/she had the capability of being of sound, rational mind.

Alcoholics are human beings and even though the brain may be broke. They don’t think it is. They truly believe that they are capable of the “traditional” marriage. They long for it. They need it. Or at least they need the appearance of it. I respect that it may be what they need, but I do not need a broken brained individual to decide what clothing to wear, who my friends are, or when I should go to the doctor.

Recently I heard a wife say that her husband wouldn’t LET her friends drive her to an event. The husband is an alcoholic who drives drunk. He wanted to drive her to her destination.  I wonder in what world this would be acceptable? If Riley said that to me, I would tell him to back off. I would tell him I would not allow him to drive me around the corner, let alone to an appointment. I would remind him that he is not allowed to make decisions about my life.
My life belongs to me. Although I may include Riley in discussions about decisions, the bottom line is all on my shoulders. I don’t always make the right decision. Sometimes my decisions put me in an awkward, difficult situation. But the decision was mine. I value my life and will not knowingly leave it in the hands of a drunk driver or any other person whose brain doesn’t function in reality.

I ask all my readers to please do not get into a car with a drunk driver behind the wheel. Value your own life enough to want to keep yourself safe from harm. Take control of your life and respect your own decisions. Listen to that little voice in your head that says – you are worthwhile and you can decide on your own. Let’s not any of us leave decisions to people who may love us, but can’t understand logic or live in reality.

Sunday, April 28, 2013

My magic wand...

It is always interesting to me how life plays itself out in the real world. There are joyful times and sorrowful times. There are fleeting moments of peace and quiet and then monumental crises. Each interval of life requires a decision by someone. Sometimes the decision is by the person directly involved and other times it’s made by a second or third party. No matter how you look at it, a decision is made.

A lot of people in my life have to make decisions about life-changing circumstances in rapid succession. A friend is struggling with changes in her relationship with her son as well as her work environment. My granddaughter is juggling work, school and motherhood. Another friend fights alcoholic demons every single minute of every single day. And, my beloved Carrot is facing a surgical procedure that may cause her life to end.  Even with the procedure, Carrot’s life expectancy is grim. There is nothing I can do to help any of them except to let them know that I understand the difficulty of their circumstances. Of course, having a magic wand might be of some advantage.
I often feel that it is unreasonably unfair that some people’s lives are cut short for no reason of their own and without a decision needing to be made. Many people that I love have left this earth before I felt their time should have been up. Two of my brothers died before they could claim to be senior citizens. Carrot’s husband died only a year after they were married. I see on the news about young children whose lives are snatched before they ever really begin. There was no decision to die but there was a decision to live which didn’t come to fruition. I guess it would be best if I just remembered that things happen and sometimes I won’t be happy about it.
The thing being thrown in my face recently is about a decision to try to keep Riley alive. The newest argument in our house is that everything is my fault because I decided to call 911 when Riley was having his heart attack. It seems to Riley that it is my fault that he is alive and if he wasn’t alive, I wouldn’t be in the position I’m in today. That is the position of being his caretaker because he cannot live alone as well as many other incidental situations.
It is Riley’s opinion that if I had not called the EMTs that he would be dead and I would have my life back as it was before I took him back into my home. To some degree that is true. But then I would have to look at myself in the mirror and know that I had not thrown a drowning man a life saver that hung within my reach. Riley recalls asking me to call 911. He doesn’t remember telling me to “PLEASE, please” call for an ambulance. He doesn’t remember sobbing in pain. He says I should have closed my bedroom door and gone back to sleep.
I made a decision that night. I decided that it was against my moral convictions to let a man die in the bedroom across from mine without making an attempt to get him help. So, I guess Riley is right. It is my fault that he is still alive. However, I am not the only one to blame.
The decision made in the emergency room to air-flight him to the nearest heart specialized facility was the fault of the attending physician of that particular emergency room. When he arrived at the Heart Institute in Greenville, he was immediately taken for tests and treatment. Those doctors and nurses must also be blamed for their extremely competent and professional treatment. When Riley was placed into palliative care at the hospital and was no longer treated to prevent his death, was the hospital staff to blame? After Riley was admitted to hospice care at the nursing home and he survived, was it the fault of the nursing home staff and doctors? In Riley World, everyone who had a part in keeping him alive is at fault.
If I had not called 911, Riley would not have lived. I would not have to worry about who is going to look after him if I should have to be gone for an extended period of time. I would not have to be concerned about him falling and hitting his head on the Travertine Tile. I would not have to be concerned that he might say something hurtful to the great-grandchildren. I would not have to worry about where the money will come from for his legal fees and medical extras. I would not have to make sure he gets to his appointments or that he gets the most out of each one. I would not have to be concerned about when he will start drinking again. I would be Riley free.
I have to be careful because when Riley blames me for him being alive, I get angry. I feel that he is ungrateful for having an opportunity to breathe the air when so many others didn’t have the chances he has had. For Riley, the life he has now is not an acceptable life at all. If he cannot drink and has no means of being able to obtain alcohol then he has NO life worth living. He states that he is a prisoner in this house and I am his warden. He is not happy and won’t be happy until he is able to find some alcohol and get drunk.
This is when a magic wand would serve me well. I could use it to give my friend and her son insight into how they much they will appreciate each other when all the growing pains cease and they can move on to having an adult relationship. Maybe I could help her see a happy future after the chaos stops. The wand could be waved over my granddaughter so she could see what an awesome Mom she is and maybe even some money might appear to help with her tuition. The same wand could build a barrier between my alcoholic friend and the sneaky little demons that haunt her so she can have the happy productive sober life that she so desperately wants.
Most importantly I could use that magic wand to give Carrot the balance of Riley’s life and Riley the balance of Carrot’s. That is a decision I would happily make.

Tuesday, April 23, 2013

A little more review...

Let’s do a little more review, but this time let’s take out any reference to my personal situation. Let’s talk about something more important than how I get by financially or why I ended up writing this blog.

1 -- End-stage alcoholism is the condition of an alcoholic who has reached a certain stage in the addiction. Most are alcoholics who have been through rehab or detox several times with each end result being a return to drunkenness. By this time the organs have suffered damage and the brain does not function with logic. Often there may have been a stroke or heart attack caused from alcohol abuse.
2 – The liver is a miracle organ that has the capability of healing itself as long as there is still viable healthy tissue available for re-generation. However, eventually the liver will reach a point where there is no healthy tissue at all and will begin a total shut-down.
3 – The front lobe of the brain houses our ability to make logical, rational choices with a moral compass. When the brain becomes saturated with alcohol, the brain loses the ability to discern logicality from irrationality or to make moral choices. Expecting an alcoholic to make a rational, moral choice is like asking a baby not to cry for their next feeding.
4 – It doesn’t really matter what name you give to all the various medical complications associated with alcohol abuse. What is important is the effect it has on the body and brain. Once the non-alcoholic understands what is happening inside the alcoholic’s body, they are better able to understand why things are the way they are. But, really, that’s all it means if the alcoholic doesn’t stop drinking the condition will continue the downward spiral.
5 – There is no cure for alcoholism. The only thing that can save an alcoholic’s life is a desire to change their life direction. That’s a very tall order for someone who has a faulty frontal lobe causing them to not have the ability to reason.
6 – Recovery is possible even for end-stage alcoholics. Sometimes it may take some manipulation and coercing to get them into a detox center. Sometimes they get into detox via a medical crisis. However it happens doesn’t matter. What matters is that it happens. It is rare that an end-stage alcoholic suddenly decides that sobriety is a better way of life. I just don’t want anyone to think that it is completely impossible because it is possible.
7 – There are many support groups for the caretakers, family, and/or friends of alcoholics. Once upon a time the only option was for a 12-step program. That’s not the case anymore. Simply Google Alcoholism Family Support and you might be surprised as to how many options there are. Of course, anyone who reads my blog is invited to join the OARS Family and Friends Support Group. You will find the link in the side bar of this blog.
8 – It doesn’t matter if the alcoholic in your life is at end-stage, early stages or has already passed. What is important is that it does not destroy the lives of the people who love the alcoholic. There is life outside the alcoholic chaos. It isn’t easy to find, but it is there. It’s worth finding, so don’t give up the search.
9 – The alcoholic does not set out to harm anyone. They simply can’t see that they are putting people at risk. It’s part of the frontal lobe thing. The rudeness, meanness, narcissistic, selfishness is part of the result of the alcohol abuse. It is up to us (the caretakers) to decide how to handle the situation. We can ignore it, fight it, run from it, or cry about it. There is no right or wrong way. There is each individual’s way and that’s all.
10 – Detach is not a dirty word. I know it feels like it. I know it feels like we are abandoning the alcoholic and that action often feels like we are allowing them to die. But, really, there is no way to stop that snowball as it picks up speed going down that mountain. The only thing we can do is find a way to keep the fall-out from falling on us. Find a way to have a life of your own and enjoy that life.
11 – Everyone on this planet is affected by alcoholism in some way or another. There are economic, social, and familial consequences to alcoholism. Even those who do not drink must pay the debt created by alcohol abuse through higher medical rates or taxes to pay for prison sentences. Families pay by the loss of a father, mother, son, daughter, sister or brother. No one is immune.
What I’ve touched here is only a small amount of what needs to be known about alcoholism. There will always be new information to reveal. There will always be stories of heartbreak and stories of success. There will always be people who are trying to make a difference.
At the end of Alcohol Awareness Month, we all need to be reminded that things are not always as cut and dry as they may seem. We all need to be reminded of the basics. We all need to remember that every one of us is struggling in some way. Let’s end this month with a renewed energy to survive.

Thursday, April 18, 2013

Let's review...

Every once in a while, when I read some of the comments to my posts, I take a deep sigh and step back. I take a little walk around the property and breathe in the peace and quiet. Then I come back in, fix myself a fresh cup of coffee (Dunkin Dark, 2 tsp sugar, and lots of real cream), and sit in my big chair enjoying the creamy sweet liquid. It’s during this time that I’m thinking about how to respond or what should be the topic of my next post. Sometimes, during this time, I’m just putting my emotions in check so I can think objectively.

When I started this blog (way back in October of 2010), I never thought I would really become a public figure. I never expected that I would sometimes be getting as many as 3,000 hits per day. But, for good or not, it seems that I have, in fact, become somewhat of a public entity. I’m OK with that because I know that I must be helping someone to be generating so much interest. Someone somewhere is able to take the things I’ve learned and put them to good use.
However, with all this popularity come the “other” people – the ones who have a tendency to never see the good in anything.  I know and understand that my point of view may not be shared by everyone who reads my blog. Some people read it just to see what kind of stuff I’m spouting off today because they may think I’m just ridiculous. Maybe it gives them entertainment. That’s OK with me too. Whatever reason they may have for reading the blog, is their reason and not necessarily shared by everyone else who reads the blog.

I think what bothers me is that I feel I’m repeating myself over and over again. Sometimes, I want to say… “You can find that info in the post dated ____” , but it’s unfair of me to think that everyone has the time to read the blog from beginning to end. We are all busy and there are 224 posts not including this one. That’s a lot to read. So maybe it would be appropriate for me to do a little review, so that even the readers new to my blog will understand the background.
Here are some facts:
1)       Riley and I separated in the mid 1990s because he was a womanizing drunk who refused to get help or believe that he needed help. He had been through multiple rehab and detox centers and each time refused to take the help offered to him. When he retired from the Navy, he refused to take civilian employment because it interfered with his drinking. As a result, we lost our home and two cars. Even though I worked three jobs, I could not make ends meet enough to save our home. However, Riley managed to find enough money to take his mistresses on elaborate dates and weekends away. In a nutshell, this is why we separated.
 
2)      I did not get a divorce because I knew that one day the drinking would catch up to him and that he would need someone to take care of him when he stopped being able to care for himself. I did not want my children to be put in that position so we stayed married. Riley knows why I did not want a divorce. Riley didn’t want a divorce either because he said it gave him an excuse for why he couldn’t marry anyone else. It gave him an “out” of the relationships he wanted out of. It worked for him. 

3)      I get NO money stipend for taking care of Riley. I took over his finances when he came back to live with me and had to work very hard to get him out of a bad money situation. I used my own money to help him get even. Whatever money Riley has coming in gets combined into our joint marital finances and is used to pay OUR bills and any expenses relating to the fact that he cannot take care of himself any longer. Riley is not eligible to be placed into a nursing facility because physically he is not in need of nursing. To have him put into an assisted living facility would cost more than his personal income and most of mine. I would be left with about $500/month for my own living expenses. I can’t live on $500 a month. 

4)      I do not make any money for writing this blog. I have been asked for permission to advertise on the blog, but am extremely selective about what gets posted here. If something does not benefit my readers, I will not post it. I am only open to advertising that provides some meaningful advantage to my readers. Writing the blog is not a money making activity. The only money derived is from the sale of my books and donations to the OARS Group Fund. All these proceeds are applied to maintaining and furthering the OARS Group membership sites and future live meetings. I do ask for donations to the fund and I’m thankful for each and every one without regard to the dollar amount. 

5)      Comments are encouraged. Not everyone agrees with me and those comments are welcome as well as the ones that are in agreement. What is not welcome are comments that are mean and hateful. You are welcome to your opinion and I’m happy to allow that opinion to be read. 

6)      There are things inside the covers of my book that you will not find on the blog. It is the most complete way for me to communicate who I am and how I got here. Besides being factually informative, it is also the story of a young girl groomed to become a caretaker. There are instances in the book that will never make it to the blog. You can purchase it though Smashwords for your e-book reader. It is not out in print, as I do not have the money to make that happen. 

That’s my review. Please use the comments to ask me questions on topics you don’t feel I’ve covered adequately. I will do my best to answer each and every one. I appreciate all my readers and I thank you for being one of my followers.