This week marks the end of any extra help in caretaking
Riley. About a week ago I received a call from our Veterans Administration
social worker and was told that they were assigning me 12 hours a week from a
personal care aide. The very next day I received another call from the same
social worker that my 12 hours had been taken back because the VA has
discontinued the program that gives that benefit to any veteran who does not
have a service related disability. I will have no aide, no respite time, and
the visiting nurses paid for by Medicare are at their end of time. We have
physical therapy and occupational therapy for another week. Then I’m on my own.
Riley has improved under the direction of the PT and OT. He
can now get out of the bed and into his wheelchair. He can also get to the
shower and have a real chance to clean up. I should be happy for him. He can do those things but requires